One of our main targets is to make the data available and show how people cope with the same virus in different situations in different countries. We have created an online data visualization tool for policymakers and analysts to compare psychological responses across countries.
Below, we outline the 5 stages of participation, and how your data is handled at each stage.
Filling out the baseline survey is quite straight-forward. For every question, you can decide if you would like to answer it or not. If there is any question you prefer not to answer, you can skip it. There are two questions in the survey that are considered “directly identifiable personal data” – namely your email address and your post code / ZIP code. To protect this information we take a number of measures, namely:
There are only two data managers who are allowed to work with the raw data (i.e., data that links your email address and ZIP code to your survey responses):
As such this data is restricted, and not shared with the whole research team.
The two data managers, who have access to the raw data, are working from secured computers (e.g. all data is encrypted, password-protected, and remains on a local hard drive). The data is stored in an encrypted data storage facility and will only remain on the (encrypted) local hard drives of the data managers for the duration of data processing.
If you decide to take part in the follow-up surveys, we will use the email address you provide to contact you. The first few weeks the re-contact will happen every week, and at a later stage we will contact you monthly. Each time you receive a follow-up survey you can decide whether you want to be recontacted again or not. Your email address is solely used for recontacting you for upcoming waves. In order to protect your privacy, your email is stored locally in a separate file and a pseudonym is used to link your responses from the recontact to your responses from previous surveys. Please see the next section for information on how the pseudonyms are generated.
The image below shows an overview of how the data files are created. In general, there are three types of data files the data managers handle:
Any researcher who wants to work with the PsyCorona data, needs to request access in the following way: First, they have to propose an analysis plan which outlines how they will handle the data. If the analysis plan is approved, the University of Groningen will share the pseudonymized dataset with them that contains only the variables the researchers are interested in. By sharing only the most relevant variables we ensure that only minimal data is shared.
This research project is a close collaboration between the University of Groningen (dr. Pontus Leander), New York University – Abu Dhabi NYUAD (dr. Jocelyn Belanger), and Utrecht University (dr. Caspar van Lissa). This means that these teams have additional privileges but also responsibilities. We specify these responsibilities and privileges here:
Data collection: NYU-AD and the University of Groningen are responsible for collecting data for the baseline measure. NYU-AD uses partners to collect data. The University of Groningen is responsible for managing recontact surveys and raw data collected by NYU-AD.
Data handling: The data managers at the University of Groningen are responsible for data security. This means that the University of Groningen takes care of downloading all raw data and pseudonymizing your responses. Only in Groningen come ZIP codes and region information, e-mail addresses, your responses to the baseline survey, and your responses to the recontact surveys together. Researchers at the University of Groningen then merge these datasets and create pseudonymized datasets.
We hope that the information above has provided you with an understanding of how we are trying to do our utmost to keep your responses safe and secure. We think consent is a relation that we build over time. We will, therefore, periodically further develop information on collaboration and try to make the best decisions to further ensure your privacy rights. Thank you for your trust and support during this research.